The Live the Lake NJ Family of businesses are a group of unique experiences and locations around Lake Hopatcong.
Live Love Landon, a non-profit organization, was established in 2022 by Danielle Maktini and Shane Wierks, Mount Arlington parents of Landon Reed. Landon was diagnosed with neurological Gaucher disease earlier in 2022. The mission of Live Love Landon is to:
All green fees benefit Live, Love, Landon
10% of all sales benefit Live, Love, Landon
Drinks, food, music, lucky baskets, & more! All proceeds will benefit Live, Love, Landon and the Carol G. Simon Cancer Center.
RESERVATIONS ARE REQUIRED.
Landon Reed was born February 14th, 2022. He is the only child of Danielle and Shane with captivating blue eyes and an eager sunny smile. Shortly after celebrating Landon’s first month birthday, he was diagnosed with neurological Gaucher disease (type 2/3).
However, a clinical trial to identify and apply treatments for Neurological Gaucher disease is underway at Prevail institution in Minnesota. Six month old Landon is one of 5 babies globally to receive cutting-edge gene replacement therapy as part of this study, including hearing aids, gene replacement therapy, special diet/formula, enzyme treatment and much more. Landon and his family must travel, spend hours at the hospital in Virginia every Monday and in Minnesota once a month. All of this means nothing if they know they can improve his quality of life by managing symptoms.
His family hopes that Landon will not be the only one to benefit by the clinical trial. Through his participation, scientists and doctors around the world are one step closer to identifying treatments, or perhaps a cure.
Until then, it is their hope that Live Love Landon will have a meaningful impact. Live Love Landon will serve the families and children affected by Neurological Gaucher disease through educational and awareness initiatives as well as supporting a community looking for hope, treatment and a cure.